Sunday, January 27, 2013

A day of trying to make lemonade from our lemons

Hello!

I wanted to tell you about my day.  We were invited to join some of my CI friends to go swimming.  As you know from previous posts CI's are not something you can get wet.  I have the newest N5 but that is just good for splashing for the most part. It is still better than nothing!

Today I put on my tinny yellow bikini and tried again to get my processor into a plastic bag and then make this whole bag with the implant stay on my head so I could hear AND swim at the same time.  We get so many stares that people want to take pictures of us.  We must look kind of freaky to them.  To tell you the truth us kids don't care as much as our wonderful families do.  Our families have to work hard to protect us in so many situations.  All of our families are so proud of our implants and they love when people are curious and ask about what is that on his or her head.  I have to tell you though if some stranger starts taking pictures without asking or talking behind our backs, OMG LOOK OUT!   Our families can transform into animals in mere seconds!  Even if your own family isn't along you are so safe. The mommy or daddy from another CI family is as good as yours.  It is so fun to see the bond these families have that each child like me has so many parents always there for you and cheering you on thru everything you do in your whole life even if it has nothing at all to do with hearing!  

Once again the plastic bag was just ok. Most times I still prefer to stay deaf. It is just easier not to worry if I lost the processor or if the headband or bathing cap is holding it on correctly. I just hate not being able to hear when it's off though.  We don't sign much but in these instances I see a need to continue on a better signing education.  Most places steer you away from learning to sign cause they say that hinders your learning to hear with CI's .  In a way it does but we have to remember we are still totally deaf kids without this crazy magnet on our heads.

Today I will continue to make refreshing lemonade with my lemons!

Written by Mommom

Wednesday, January 23, 2013

January 2013, Happy New Year

Morgan went to see Dr Germiller last Thursday for her post surgery check.  What wonderful news we received.  For the very first time in Morgan's life she can hear bilaterally and she has no holes left in her ears from all the surgeries. Morgan did have two dizzy spells on Friday night but maybe that was from the Dr being in her ears.  Let's pray that is what it was from.  Oh Happy Day!  Morgan will be going back to CHOP at Easter time to deliver her Woofi Sand Buckets. 

Morgan has been trying to figure out how she is going to make the money to buy these Woofi's.  She has some donations left of crayons and coloring books but she really wants to make sure she has a Woofi in each bucket.  This past weekend at a very brisk 20 degrees Morgan decided to make brownies and sit out front and sell them.  She made 75.00!  Whoo Hoo!

This was another instance that we see God working thru the weakness Morgan was given.  What a gift in disquise this continues to be.  Here she is sitting in her little chair at 50 cents per brownie and some people were nice enough to ask what she was selling them for.  Morgan had brightened so many lives in two days of brownie selling.  It is just awesome to watch God work thru this child.  We had 3 people come back and give her $10.00 and $20.00 donations.  I would have to describe this day as the warmest cold day on record! 

Tuesday, December 25, 2012

Merry Christmas!

Hi everyone! I wanted to tell you about what an awesome Christmas I had.

My Christmas started way before yesterday or today.  I was so busy with getting those stockings ready for CHOP the days just went so fast. I had to figure out how I was going to be able to fill those stockings without having a job.  It all worked out and I was able to give 26 of them.  I have to start thinking about getting my sand buckets ready for Easter.  It makes my heart feel sooo happy to be able to do this.

On Christmas Eve we opened presents at Mommom and Poppop's. I got a Barbie Dreamhouse and Rylee got a Bitty Baby crib and doll.  Mommom loved the bracket I made for her.  Mommy and I decided we would make all our gifts this year. We saved a lot of money and I think people liked our gifts even more.  It was very hard work. We made ceramic coasters with our pictures on them and calendars. I say these presents came from our hearts. We went to 7:00 service at church and Mommy and I volunteered to light the advent wreath. It was fun. Our church even had birthday cake for Jesus.

Today we opened our presents from Santa and then visited Aunt Jeanette and Uncle Jay.  When we left there we went to Grandmom and Grandpops party. I was so excited to see everyone.

Merry Christmas everyone and most importantly Happy Birthday Baby Jesus!

Love, Morgan


Thursday, December 20, 2012

Well today was an extra special day!  Morgan worked so hard on putting together stockings to donate to CHOP for some children before the holiday.  We started off with 24 stockings each with a Woofi, the Woofi Christmas book and the book How to fill a Bucket.  They were also filled with a juice box and a snack and some little goodies.  The Woofi books and How to fill a Bucket books were so graciously donated by the authors.  With out them and the help of many people that Love Morgan this wouldn't have been possible.  As her Mommy I couldn't have been more proud of her.  She amazes me by her generosity each and every time she does this project of hers.  To help with purchasing all the Woofi puppies Morgan so selflessly went to the bank and cashed in all of her change from her piggy bank.  WOW!!!  Is all I had to say when she told me she wanted to do that.  Well on Fri Dec 14th a tragedy happened in CT at Sandy Hook and after that Morgan decided we needed to do whatever it took to put together 2 more stockings.  She wanted to be able to donate 26 stocking each one in memory of the 20 children and 6 teachers that lost their lives.  I thought this was a wonderful idea and we were able to make that happen.  Today Dec 20th Morgan along with Mommy, Mom Mom, Grandmom, Grandpop and her cousin Lillian were able to hand deliver the stockings to Dr Germiller.  He is the most amazing Dr in our lives.  He is the one who helped change Morgan's life and gave her the gift of hearing.  I hope these 26 children have a smiles as big as the one Morgan had delivering them as they do receiving them.  May God bless each and everyone of them.   We pray they have speedy recoveries and Have a very Merry Christmas.  Tis the season to pay it forward.  Morgan you have inspired so many people and continue to show us what the true meaning of life is all about.  We love you to the moon and back.  Rylee has the best role model to look up to as she grows up!  Keep up the Great work!