The feeling you get when you help someone

Hi everyone,

Christmas is over and I am back to school.

 I am scared to death for my upcoming surgery!!!!!  Sometimes I can't help it and I am not so brave as so many of you think.  It is hard for me to talk about it even though I know I should.  I have talked to my teacher and the kids in my classroom.  My class has all started praying for me. Mommy has me on the pray list at our church.  Those people really  know how to do it!

 Many people say, well she has been thru so many surgeries and I should be a professional.  You know what the problem is?  I have been thru so many surgeries and I know what happens and that is why I am scared.  I need all the prayers I can get.  My Mommom and I always pray for God to wrap his big strong arms around me and let me feel his presence. 

Today I found out about a little girl that also needs some prayers and help.  We have a little money since our next bucket donation isn't until Easter and we sent it to her.  She is the same age as me, she is blind and deaf and has many other issues.  We are helping to get her a suit that is only made in Sweden.  Some day we hope this suit allows her the ability to walk. 

The nice person doing the fundraiser for this little girl sent me a note today and I want to share it with you.  I know some of you are my biggest supporters.

Dear Morgan,

I received your very generous donation today to help Tori Joy and her family.  Tori is 8 yrs old and this money will go towards a neuro feedback suit.  (this will help her muscle work better).  This suit is coming from Sweden!  It will be custom fitted for her and they will adjust the suit for her as she gets bigger.  Tori's mom and dad are hoping that this suit will help her to one day be able to walk.  I am attaching a letter that gives you some information on an organization that they are working with.  It also tells you a little about Tori and her family. 

Morgan God has blessed you with the biggest heart ever!  As we know God makes us all special but you be dear are so much more than special.  You have more kindness in your heart than many grown-ups I know.   

Thank you from the bottom of my heart.  You truly are a remarkable young lady know my entire team of friends who are doing this little fund-raiser are also thankful.  May God bless you and keep you close always. 

How many kidney stones can a 7 year old make?

Saturday the 21st we met Morgan's new surgeon. He actually works on Saturdays at CHOP. Needless to say Morgan was very upset before, during and after the appt. We will be looking at 2 scenarios. Best case scenario is when they start surgery they see the camera and tools fit in her little body parts and they have no trouble getting either a 6mm lone stone or they find a cyst filled with lots of small stones. They could do another cat scan now to see if its a cyst or one stone but we opted not to put her thru under test when surgery has to be performed regardless.  If its a cyst they will also burn it so that it only has a 2% chance of coming back.

Next scenario would be the issue of the camera not fitting and a stent would need to be put in and surgery would happen at a later date. This way she would most likely need 3 surgeries and we all know Morgan has been thru this too much already.

On a brighter note Christmas vacation has been wonderful. Today we are going to Disney on Ice.

Love to all!

Who says Friday the 13th is bad luck?

Tomorrow marks the 200th stocking or sand bucket delivered to the children at CHOP!

Friday December 13, 2013 will be a special day for many children at CHOP.  Morgan is hoping to make many children smile when they get their stocking with Woofi inside it. 

Morgan has had to work harder than ever to make this donation happen this time around.  She made an extra donation this year in October which put her behind on gathering enough money to buy the Woofi's.  She put the word out and received the needed help from her supporters.  Morgan is so thankful for the outpouring support she has received.  She wouldn't have been able to make this happen without everyone!  The kind man from the Lehigh Valley purchased all the stockings for her. A man she has never even met. There are so many angels among us!!  We don't think some of our helpers know how  truly thankful Morgan is for their undying support. 

Merry Christmas and Happy New Year to you and your wonderful families!

Love and Hugs,
Morgan Keely

My day at CHOP on November 25, 2013

Well, I had a long day!  Mom and Dad took me to CHOP this morning for an ultrasound of that kidney at 11:00, and then after that we met with the urologist.  When we were done with him I went to Audiology for my yearly mapping.

I don't have great news to tell you today.  My mommom could tell right away I was a little upset when I called her on my way home. 

I am getting ready to deliver a big pile of Christmas stockings to CHOP and here I will be a patient again.  :(   I will have to work fast getting these stockings made and the brownies baked to get more money to by the Woofi's. 

My urologist has a plan.  It goes like this...... He is meeting on December 4th with the other doctors he works with to discuss my case.  I am not sure why that is.  After they talk the next step will be to put a stent inside of me and leave it there for a little bit (maybe a week or two)  After this stretches things around Mommy and Daddy will have to take me back to CHOP in Philly to have surgery.  The kidney stone is 6mm and needs to be surgically removed.  I am really not smiling when I tell you this. 
We also dropped off the stone I passed the other week at the lab today so they can see what it is made of.

Please keep me in your prayers right now!

Love to all!!!

Morgan

Morgan's antics

Let's play catch up here.

The first semester is over at school.  Morgan did an awesome job along with her teacher cause it takes two to pull off a good semester.

Last week for a couple days Morgan was complaining she didn't feel right.  Then on Monday she had such pain so off to the Dr we went.  The Dr thought she could have appendicitis so he sent her to the ER.  At the ER it was diagnoised that Morgan's kidney stone wasn't behaving anymore.  When Morgan was 16 months old she had a kidney infection.  At that time we found out that she had a kidney stone but it wasn't causing any problems and would be left alone.  She sees a urologist for follow up every two years.  The hospital did an ultrasound and it was found that she had 3 stones.  One of the stones was causing a blockage.  Morgan was sent home with a strainer and later on Monday  night she did end up passing this stone.  We go down to CHOP on November 25th for another ultrasound and visit to the urologist.  The one stone is 4mm and I am not sure what the 2nd stones size is.

This past weekend we visited Gaylord's on the Potomac for a Christmas weekend.  We went thru the ICE tent.  This tent is 9 degrees and you have to wear special coats to go thru it.  It was amazing to see everyting made out of ice.  Even sliding boards.  People come in from China to build this masterpiece every year.  It was totally amazing!

We are getting ready to make our Christmas delivery of stockings to CHOP.  We have to bake some brownies and make some money for this to happen.  We have enough crayons and markers and we also have enough money to buy the stockings.  We are going to be baking up a storm so we can make sure there is a special Woofi puppy for each child.  Wish us luck,  this could be hard this time.

Have a wonderful Thanksgiving!

Love Morgan and family.