Sunday, January 27, 2013

A day of trying to make lemonade from our lemons


I wanted to tell you about my day.  We were invited to join some of my CI friends to go swimming.  As you know from previous posts CI's are not something you can get wet.  I have the newest N5 but that is just good for splashing for the most part. It is still better than nothing!

Today I put on my tinny yellow bikini and tried again to get my processor into a plastic bag and then make this whole bag with the implant stay on my head so I could hear AND swim at the same time.  We get so many stares that people want to take pictures of us.  We must look kind of freaky to them.  To tell you the truth us kids don't care as much as our wonderful families do.  Our families have to work hard to protect us in so many situations.  All of our families are so proud of our implants and they love when people are curious and ask about what is that on his or her head.  I have to tell you though if some stranger starts taking pictures without asking or talking behind our backs, OMG LOOK OUT!   Our families can transform into animals in mere seconds!  Even if your own family isn't along you are so safe. The mommy or daddy from another CI family is as good as yours.  It is so fun to see the bond these families have that each child like me has so many parents always there for you and cheering you on thru everything you do in your whole life even if it has nothing at all to do with hearing!  

Once again the plastic bag was just ok. Most times I still prefer to stay deaf. It is just easier not to worry if I lost the processor or if the headband or bathing cap is holding it on correctly. I just hate not being able to hear when it's off though.  We don't sign much but in these instances I see a need to continue on a better signing education.  Most places steer you away from learning to sign cause they say that hinders your learning to hear with CI's .  In a way it does but we have to remember we are still totally deaf kids without this crazy magnet on our heads.

Today I will continue to make refreshing lemonade with my lemons!

Written by Mommom

Wednesday, January 23, 2013

January 2013, Happy New Year

Morgan went to see Dr Germiller last Thursday for her post surgery check.  What wonderful news we received.  For the very first time in Morgan's life she can hear bilaterally and she has no holes left in her ears from all the surgeries. Morgan did have two dizzy spells on Friday night but maybe that was from the Dr being in her ears.  Let's pray that is what it was from.  Oh Happy Day!  Morgan will be going back to CHOP at Easter time to deliver her Woofi Sand Buckets. 

Morgan has been trying to figure out how she is going to make the money to buy these Woofi's.  She has some donations left of crayons and coloring books but she really wants to make sure she has a Woofi in each bucket.  This past weekend at a very brisk 20 degrees Morgan decided to make brownies and sit out front and sell them.  She made 75.00!  Whoo Hoo!

This was another instance that we see God working thru the weakness Morgan was given.  What a gift in disquise this continues to be.  Here she is sitting in her little chair at 50 cents per brownie and some people were nice enough to ask what she was selling them for.  Morgan had brightened so many lives in two days of brownie selling.  It is just awesome to watch God work thru this child.  We had 3 people come back and give her $10.00 and $20.00 donations.  I would have to describe this day as the warmest cold day on record!