Thursday, June 21, 2012

Week of Dr appts

Morgan has had her share of Dr appts this week.  When Morgan and Rylee went for the yearly check up's last week we would have guessed the Dr would have said something about our chubby Rylee.  Nope, Morgan's turn again.  He was concerned she is dropping on the growth chart even though she grew and gained weight it just wasn't enough.  He advised she go for some blood work for her thyroid.  After reading some of the things that go along with a thryoid not acting correctly we thought maybe she does have an issue.  We have noticed she isn't as sharp in the past couple months as she usually is.  Next appt was CHOP audiology.  It has been a year since her last mapping.  There were tons of adjustments that they made to her newer ear.  This was probably the problem for her not being as sharp.  She is getting new processors that will accomodate a personal FM system.  We will see how she does with this.  A lot of times younger children have a hard time figuring out if the FM isn't working correctly.  We have used a soundfield in her classroom up to this point.  The FM would not be used all the time as she needs to be able to hear good without this crutch.  But it could be a tool that she would benefit from greatly in the classroom.  We have seen how fast a CI kid can go from above par to falling behind so quickly.  We understand why they want these kids always a step ahead of the other kids because of this.
Next Dr visit was CHOP urology.  Morgan has a 2 mm kidney stone that gets checked every other year to make sure this little stone stays floating and not growing.  So far so good.  Next appt will be when she is 8 years old.  Last Dr visit for the week was with Dr Godfrey, eye dr.  Morgan was complaining in school that she was having a hard time seeing the whiteboard.  She is not 20/20 but she isn't bad enough to get glasses.

One more thing,  on the way home from CHOP we were going to visit the zoo.  We were getting off at the Girard Ave exit and WHAM, someone hit us from behind in our brand new car.  Morgan of course was freaking out.  She has been in 3 accidents so far and knew just what this could mean.  We called 911 and by darn the guy drove off.  The officer said this happens all the time in Philly.  He said he probably had no license or insurance anyway.  We did still enjoy some time at the zoo though.

Morgan also started swimming lessons.  She is really scared of the water.  We think a lot of this has to do with a bad experience when she was little and had to swim without being able to hear.  She really doesn't even like to get her face wet.  I think swimming is the worst thing about being deaf.  Now that her new implants are somewhat water friendly it isn't as bad.  It has always been hard to keep her attention at the pool cause kids just like to be everywhere and to keep facial contact gets hard.  It always seems like we struggle with this.  She is enjoying the water a little bit more.  One more week of classes though.

Off to the beach this weekend for some boating and relaxing!  Hope it goes without incidence.

Thursday, June 7, 2012

Happy Birthday Miss Morgan!

What a challenging 6 years we have had with Morgan.  Soooo many things have happened in a short amount of time.  Looking back over these years we can now clearly see how God is working through Morgan.  Morgan has taught us so many things that she didn't even know she was doing.  It is amazing to see how God did his work through a child! 
Morgan's whole family has learned never to take anything for granted.  We have learned that CHOP is full of families dealing with severe heart break every single day.  We don't understand the suffering that happens to small children along with their parents.  It is the place every single parent should have to visit.  So many people take things for granted.  When a baby is born and they do all those tests to your newborn that  you don't even know they are doing.  All that stuff is taken for granted til the sky falls. 
Morgan has finally had  her first birthday party with kids.  She and 8 friends had a party at Sweet and Sassy.  They had soo much fun!  That will be the first and last kids party for quite a few years.  The prices for having a kids party are ridiculous!  The girls had fun getting their hair done and nails and makeup.  They then got to dress up and use the runway for some fashion show time. Morgan was in her glory.  Her face was just priceless.  That same day we had our family party too.  Rylee and Morgan had to share the limelight for that one.  Didn't bother either one of them  one little bit to share the day.  That is good cause they will be doing that shared party for many many years.  Just so they each have their own birthday cake.
We also had yearly check ups this week.  Morgan grew 1 1/2 " and about 2lbs since last year.  She is a tiny little thing and they are watching her closely.  She is 34 3/4 lbs.  They will test her thyroid just to be safe.  She has such a tiny set of parents that is probably those genes that  are working in her again.
Next Wednesday Morgan has to go back to CHOP for a mapping.  It has been a long time and we are noticing some things that are leading us to her needing a mapping.  She just doesn't seem to be as sharp as she usually is.  We now can see why they say you  have to keep a CI kid one step ahead of the class all the time cause they can fall behind so fast you won't even notice it.  That seems to be happening.  We didn't know if what we were witnessing was a 6 year old selective hearing or just the end of a long school year. I will  post next week to update on this mapping.  Also, next week she goes back to the urologist at CHOP for her kidney stone issue.  Hopefully this hasn't moved and is still just sitting there being a good little stone.
After the morning appointment at CHOP she has a 1:30 appt with the eye dr.  The teacher has noticed Morgan's sight is not as sharp from a distance.  Nothing was noted at her check up last night though.  Hope all this turns out good too!
Until next week, Happy Birthday Morgan and Rylee!!!!