Tuesday, February 25, 2014

Paying it Forward Just Because............................

I feel so so much better.  It was a horrible week.  I was in so much pain like I never imagined.  I couldn't even get upstairs til Friday.  When I had to go to the bathroom I just prayed and prayed.  It just hurt so terribly bad.  On Sunday night Mommy and I pulled the stent out.  I think I screamed so loud I could have heard myself without my implants on!!!!!!!  Mommom and I prayed while Mommy pulled the stent out.  It felt so good to get that out of me.  I have had a stent inside of me since February 6th. 

I have be given so many get well cards and gifts that it is now my time again to pay it forward.
I am so thankful for all the love that was given to me.  So many Sunday school classes from all over the area took the time to make me really nice cards.  There are so many good and God loving people in my life.  God is so good to me!!!  My Pennview family has supported me beyond our wildest dreams.  I am so happy to call them FAMILY!  Once again God is using me to do his work.  I along with the help of my family are making children smile. I think when kids smile adults do too.

Tomorrow my pay it forward project will be taking place in Pottstown, PA.  I have learned that there is a program called Operation Backpack that provides food to children in need.  These children would go without food the entire weekend.  This program provides help to 58 children in this local school district.  The children pick up a back pack on a Friday and bring it back to school on the following Monday.  If this organization didn't do this there would be 58 very hungry children.  I am going to be dropping off things for their back packs tomorrow and then sometime in the near future I am hoping to help pack the back packs on a Wednesday night.

Thank you again for all the love that has been poured on me during February!

Love,
Morgan and Mommy

Friday, February 21, 2014

Second Surgery 2-18-14

Morgan and Mommy went to Philly on Monday night due to more snow coming on surgery day.  We didn't want to take a chance of missing this day. 

Morgan arrived at CHOP at 11:30.  They were very delayed and Morgan didn't get into surgery until 4:30.  She was her delightful self and sang "let it go" from Frozen on her way into the OR.  She puts up a good front cause this little girl was very anxious. 

Surgery lasted about 2 hours.  When the surgeon came out he said the Diverticulum wasn't there at all.  They found that there are no pockets in Morgan's kidney.  They told us her kidney is deformed.  The blessing in all of this is that usually kidneys that are deformed don't work correctly.  Morgan's kidney is doing everything it is supposed to do.  Blood and urine are both flowing nicely.  They said if this was know ahead of time neither surgery would have been needed.  While they were in there they did removed 3 stones.  Two 4 mm ones and one 5 mm one.  It is now Friday and Morgan is still in a lot of pain.  Hoping she turns the corner today.  We thought she would have been back to school yesterday but she still has trouble walking and is in alot of pain when using the bathroom.  When we do the bathroom we just hold hands with her and pray the entire time! 

The urologist feels that Morgan will always have kidney stone issues as it is genetic.  We can do things to help prevent problems like drinking lots and lots of water.  They would like to see her drink 1 1/2 liters of water per day and at least 8 oz of lemonade.  This is something that she needs to work on.  But if it keeps these stones away that will be a plus. 

All the things Morgan has been thru she has always been such a strong little girl.  This past surgery was the first time in her life we have heard her express the question, "why is all this happening to me?"  Something to work on but she has such a strong faith this won't take too long.  Pennview and her teacher Mrs Smith will help us with this also.  We can't express in words the appreciation we have for Morgan's school and it's teachers.  Morgan being able to attend a stellar school like Pennview is a blessing in itself!

Hoping for a warm happy spring weekend.  We have lots of Easter Woofi buckets to start getting ready.  Easter will be here in no time!!!!!

Love to all,
Morgie and Mommy

Thursday, February 13, 2014

One week later......................

Morgan is one week post op  Hard to believe it is a week.  Morgan has had a tough week  She had a very upset stomach when she woke up and was given medicine for that.  She got home about 9PM.  Thursday night went ok and even Friday during the day she was "ok".  She does have stent pain but was under control. 

Friday night she went down hill.  She really started getting pain that was hard to control.  The pain made her throw up along with belly pain from the stent.  It was a long night for her and mommy.  She rested all weekend and by Monday felt ok to go to school.  Tuesday she wakes up with fever and we called CHOP.  They wanted her to be seen at her pediatrician for a urine culture.  Morgan is now on an antibiotic for a bladder infection.  The official culture won't be back til Thursday but in the meantime they are treating her for one.  It is pretty common to get a bladder infection from a kidney surgery. IF there is an infection it will need to be gone in order for the Dr to operate on Tuesday the 18th. Morgan was still running a fever Wednesday night of 103.  Who knows, maybe it is just a virus.

So, for now, the plan is Tuesday the 18th the second surgery will take place and hopefully they will get the stone/stones and the pocket in her kidney removed.  From what we have been told another stent will be placed after the surgery and in about a week or so that one will be surgically removed. 

Today is Thursday the 13th and we have a snow day here in PA.  This is a much needed day of rest for Morgan. A little gift from God to Morgan.

If anything changes we will update her blog. 

Love ,
Morgans Magical Ears

One more thing.......2nd Bucket of the year was presented to a little boy named Elliott having ear surgery next Monday at CHOP Chalfont.  He is already in love with his Woofi.  The CHOP nurses will be surprised he is coming with a Woofi instead of leaving with one.  We are sure those nurses will know where that Woofi came from though.  Say a prayer for Elliott's speedy recovery.

Friday, February 7, 2014

First surgery FAILED!

Ok, we are going to try and explain what is going on with Morgan.

The medical term for this is called calyceal diverticulum.
It is when your kidney isn't smooth and has little pouches or pockets.

Stones like to hide and grow in these little pockets they would like to call home.

They were hoping to go evict these free loaders yesterday but the instruments they need to do this fishing didn't fit because of Morgans size. Not because she is a 30 lb peanut but because of her inside parts.

Plan B happened and a stent has been placed to make these parts large enough for his instruments to fit. This will happen in approx. 2 weeks.
We are hopeful this will work. Dr said 99% sure but you just don't know. We will have our prayer warriors all over this!!

Final surgery would be to remove the stent.

Only thing for sure right now is #2 surgery will take place in 2 weeks and we will give you the date on here when we receive it.

Morgan was feeling better by 10 last night. She can feel the stent inside her so pray she can deal with this annoyance.

Love to all and many many thanks for all your thoughts and prayers, cards and gifts.
 
Pay it Forward this weekend!!!